Tyler's Birthday Party and other fun things...

My boy is 1!!! I can still hardly believe it! Yet here we are, life is moving on, and he is the cutest boy I know!

So this is his new face... he does this all the time now. He just scrunches up his little face and we all coo and laugh... a regular stand up comedian...

We had a birthday party for Tyler on December 30... just a few friends and our family, which all ended up filling our living room!! Tyler did great with everyone being there. He opened some great presents (thank you so much everyone!) with the help of me and Kenzie.

My sister- so faithful to her alma mater- always gets Tyler something from UNC... this time, it was a teddy bear and two balls for him to play with. Dada was VERY pleased!!!

When it came time for Tyler to have his cake... he just kinda stared at it... he wasn't very interested in making a mess or blowing out the candle or even touching it this year!!!

We even had help to get him excited about his cake!!

All the kids helped him blow out his candle, and then we all waited....

But he was not interested at all!

We even tried to get him into it a little, by smearing it around his lips... nothing... he was hardly amused!!! Next year, I am sure we will have more interesting photos to share!!!

And to further prove that we have a musician in the making, here are two videos I had on Tyler practicing for what looks like a bright future!

Comments

Diagnosis and Grace

Friends- "God is our refuge and strength, a very present help in trouble" Psalm46:1 Much has happened since I last wrote only 2 short days ago. We found out much later that night a new diagnosis, that our sweet boy has leukemia . We were not completely shocked but we were certainly shaken. After I posted about what was going on at Shady Grove, and we waited a bit more for some results, and we were informed that we needed to take Jack to Children's Hospital in DC for further testing with specialists. This raised our concern level quite high as you can imagine, that even with a snow storm coming, we were needing to make this trip. I began to google the combination of things they had found in the tests done on our little boy (swollen spleen, low platelet count , swollen lymph nodes) and came up options that were NOT Lyme disease, although a few of these symptoms did also look like Lyme. As a result of the google quest, I came across some concerning outcomes, one of the most

.Results and Re-Admission.

I am so happy to share that the results from the bone marrow biopsy came back with the results we had hoped and prayed for! They said they found less than 0.1% Leukemic cells in his bone marrow!!! So this is such great news! The prognosis is a good one, and now we get to keep marching on into the next 3 years of making sure the Leukemia does not come back and he is fully in remission! Thank you all so much for all the prayers said on our behalf! I also have the happy report of how last night and this morning went as well... So last night, we woke Jack up at 11:30 to feed him one last time before midnight. He was so sweet and groggy but ate a bunch of nuggets and french fries. We gave him a bottle and put him in bed at midnight and hoped for the best... well, he did not wake up again until 4:45... which was AMAZING for us and him! That was a long stretch for the little guy! After that he cried for a while and Jordan tried distracting him with books and holding him for a while. Jordan w

.coming home.

Well, the past 24 hours have changed things again for us! The biggest update, is that we are being discharged tomorrow afternoon some time! The reason this is so crazy is that the Dr. who was on the floor yesterday, was telling us she wanted to keep us here for the entire first month of Jack's treatment. We had begun to think through how we could do this as a family and all the changes that would entail.... and then our nurse came in this morning and told us she was pretty certain we were going home, as early as today if we wanted!! Let me tell you about the past three days that lead up to this decision of our doctor. Firstly, you should know that when Jack was diagnosed with Leukemia, he had a blast count in his blood of 37. That count is now at ZERO!!!! After the central line was put in on Thursday, they began his chemo treatments Friday. He had been having a fever up until that time. He has responded so well to the chemo, and other medications, that he has been fever free since

The Night Watches

Search This Blog