It is hard to believe it has been a month since we first heard the words Leukemia from the Doctors at Children's Hospital. Is it possible for the days to be both long and fast and the nights to seem like they will never end, and yet they are all too short? Many days, by the time is is 5:30 or 6, I feel like I am about to loose my mind! Jordan coming home is the sweetest sight for me, and the boys! I think it is a universal law, that dinner time, no matter the circumstances of life you are in, is just tricky if you have children! And this month has been no exception.
There are two reasons why I title this post as .Please Pray. One is that tonight is THE LONG ONE....after midnight, Jack is not allowed to eat until 10 or 11 am after his procedure. If you have been following the blog or talked to us, you know that this is no small feat. He has for the past 3 weeks been awake every 2 hours or so with several nights being every 20 minutes asking for food to eat- which he has eaten all of.
We are expecting this to be a long night, but we are also anticipating much grace from God to endure it with joy and faith. And for the provision of coffee tomorrow morning.
The second is, that the bone marrow biopsy being done tomorrow is VERY important. It will determine if Jack is "in remission" and determine if we can move into the next phase of treatment called Consolidation. The Dr.'s are looking to find less than 0.1% leukemic cells in his bone marrow.
The thing about cancer cells, is that they are wily... they like to hide... so even though he may or may not be "in remission" he still has to endure 3 years of Chemotherapy and many many more procedures, tests, and drugs put into his body to ensure that he does not relapse or find the cancer in another part of his body. I say all this so that if/when we get the news that the count is below 0.1%, that those who are praying understand that we are not done yet! Although this news will be good and worthy of much praise and joy, we know the road ahead is long and not without its share of bumps and hurdles.
So we are getting up tomorrow early and heading to the hospital around 7 am (into DC this time) and hoping to get little man in the OR by 9 am. We will see how it all goes, how quickly we get in, ect. We should hear a result about the bone marrow by the evening or Saturday morning. I will post when we get the results! Please pray the results are good and we can move forward! Please pray for tonight... maybe tonight he will just sleep sleep sleep.... I am not holding my breath for that one!!! But pray for grace for us tomorrow too on the ride and at the hospital before he goes under.... the long car ride with him crying and begging to eat is really hard on our hearts and we so want to give in and feed him!
A little humor in the midst of this.. last night, Jordan was making Jack some chicken nuggets in our toaster over. I heard him getting them out while I was feeding Dylan. Next thing I knew, Jordan got back into bed. I had a brief thought wondering what happened to the nuggets or if I had misheard... only to wake up to the strong smell of burnt chicken! He had fallen asleep while they cooked waking up 45 minutes later to some charred nuggets! This is the land we live in!! Oh my! Tonight is the last does of Steroids (unless they find more leukemic cells, in which case we would have another week of the steroids). Glad we can laugh at things like that, and even more glad that the house didn't catch on fire!
So please pray. And thank you for praying. We are so aware that the Lord hears and look forward to sharing with you tomorrow the many ways he not only answered but lavishly blessed and met us. Thank you dear friends.
There are two reasons why I title this post as .Please Pray. One is that tonight is THE LONG ONE....after midnight, Jack is not allowed to eat until 10 or 11 am after his procedure. If you have been following the blog or talked to us, you know that this is no small feat. He has for the past 3 weeks been awake every 2 hours or so with several nights being every 20 minutes asking for food to eat- which he has eaten all of.
We are expecting this to be a long night, but we are also anticipating much grace from God to endure it with joy and faith. And for the provision of coffee tomorrow morning.
The second is, that the bone marrow biopsy being done tomorrow is VERY important. It will determine if Jack is "in remission" and determine if we can move into the next phase of treatment called Consolidation. The Dr.'s are looking to find less than 0.1% leukemic cells in his bone marrow.
The thing about cancer cells, is that they are wily... they like to hide... so even though he may or may not be "in remission" he still has to endure 3 years of Chemotherapy and many many more procedures, tests, and drugs put into his body to ensure that he does not relapse or find the cancer in another part of his body. I say all this so that if/when we get the news that the count is below 0.1%, that those who are praying understand that we are not done yet! Although this news will be good and worthy of much praise and joy, we know the road ahead is long and not without its share of bumps and hurdles.
So we are getting up tomorrow early and heading to the hospital around 7 am (into DC this time) and hoping to get little man in the OR by 9 am. We will see how it all goes, how quickly we get in, ect. We should hear a result about the bone marrow by the evening or Saturday morning. I will post when we get the results! Please pray the results are good and we can move forward! Please pray for tonight... maybe tonight he will just sleep sleep sleep.... I am not holding my breath for that one!!! But pray for grace for us tomorrow too on the ride and at the hospital before he goes under.... the long car ride with him crying and begging to eat is really hard on our hearts and we so want to give in and feed him!
A little humor in the midst of this.. last night, Jordan was making Jack some chicken nuggets in our toaster over. I heard him getting them out while I was feeding Dylan. Next thing I knew, Jordan got back into bed. I had a brief thought wondering what happened to the nuggets or if I had misheard... only to wake up to the strong smell of burnt chicken! He had fallen asleep while they cooked waking up 45 minutes later to some charred nuggets! This is the land we live in!! Oh my! Tonight is the last does of Steroids (unless they find more leukemic cells, in which case we would have another week of the steroids). Glad we can laugh at things like that, and even more glad that the house didn't catch on fire!
So please pray. And thank you for praying. We are so aware that the Lord hears and look forward to sharing with you tomorrow the many ways he not only answered but lavishly blessed and met us. Thank you dear friends.
Comments
praying for your strength to match whatever this night and tomorrow hold!
I'm praying for your beautiful son's healing, and for you - that God will send the grace you and your husband need to sustain you both through all of this.
Love you!
~~Sena