Welcome

Thank you so much for taking the time to visit our family blog. This may be your first visit here, or you may be a friend from across the globe, or family that we have just seen. Who ever you may be, thanks for taking the time to read about our little family, and all we are learning on this adventure the Lord has called us to live! Here you will find, the random thoughts, funny stories, prayer requests, and the journey our family and Jack is on with his battle with Leukemia.

Jackers Update

Just wanted to share with you all what is going on with Jack and how you can be praying for him/us. Yesterday was 14 of Delayed Intensification. We were a little nervous that he was going to have to be admitted, because he has had a low grade fever for previous 12 hours. Our bags were already packed when I left to take him to the clinic that morning, but were hopeful that he would be able to come home. When we got to the clinic, the fever was gone. God answers specific prayers specifically!

Late last week, Kelly (the girl who lives with us) had a high fever for two days, then Tyler got it on Saturday and Sunday. And so when Jack began to have a fever Sunday night, we both thought for sure we would be in the hospital today. Since it did not go above 100.1 so far, we are just watching it. Tyler's temp was 102.2, so God is answering many prayers to protect Jack from a high fever.

Another factor that would contribute to him having to go the hospital with a low grade fever, is that Jacks blood counts are extremely low. He is now neutropenic, as his ANC is below 500. (absolute nuetrophil count- the white cells that help fight infection. When this number is btwn 500- 1000, there is generally enough protective neutrphils to fight infection.Anything below 500 is considered nuetropenic). I do not have an exact number, because they had to send his blood sample to the main hospital for a read out, as the levels were so low, the machine they have there will not read it. His ANC has not been below 1,000 ever, so for it to be so low was a little jarring for me, but not unexpected. The nurse told me to expect them to go even lower by next week. His white blood count has never been below 4.5 and today it was 1.2.

So given his low blood counts and the low grade fevers, we are watching him closely. If he gets another fever, we have to take him in to Children's to be admitted for a 48-hour stay.

Also, he has a pretty big sore on his bottom, and changing his diaper has become extremely painful for him. So much so, that he is hoarse from screaming when we wipe his bottom. Please pray that his bottom heal up, that he stop having diarrhea, and that he not be fearful of pain every time we have to change his diaper. It has become an event to change him, dodging kicks and comforting screams.

He is also back on steroids this week. We really do not feel like we ever had a week off from last week from all the effects however. He has been up several times each night, and eating a lot more than usual. Both Jordan and I are pretty exhausted from being up so much in the nights, and are praying for renewed strength and grace for another week of this.

He is such a trooper. Although he is a bit pale, you would never know he has leukemia.Still has most of his hair, with just a few patches that are the beginnings of bald spots. He was jumping on our trampoline earlier, and dancing around. He does tire easily, and that is only to be expected to increase. But other than that, he looks great.

Thanks for the support, prayers and care. We are so grateful, and are so aware of our desperate need for the grace of God to sustain us during this time

6 comments:

Bethany Bussell said...

praying for all of you guys, tali. love you!
~bethany

Evy said...

Praying for you all dear friend!

Jess said...

Tali,
I will be praying for you guys! I know you probably have things that you are putting on his bottom, but here is something, just in case you haven't tried it yet. http://www.amazon.com/Earth-Mama-Angel-Baby-Angel-Bottom/dp/B000JVEEW0
This stuff works amazing and is a very gentle, organic balm.
I also have a recipe of a balm that I made for our baby that has been amazing with healing any rashy areas and even scratches and sores on his face or other places. If you have someone who can make it for you, let me know and I'll send the recipe out (I know you are probably too busy to make it yourself, but it is super easy to make and a recipe that I learned in my Herbalist course I am taking). I also learned that when dealing with any rash, some diaper free time is super helpful - not sure how practical that is right now, but maybe something you can try at some point.

Lynnewithane said...

Praying for you all!

The Puncs said...

Tali,
Thanks for taking the time to update your blog on Jack and y'all. It's so helpful to know how to pray for you guys and helps me to carry you guys on my heart.
Davfe

mo said...

Praying for Jackers, and missing you all so much!