The Night Watches

Jack's appointment went well yesterday. We had a great nurse take care of us, which was a relief. There were tears, but they were short lived and quickly forgotten with movies and lollipops. This is an answer to your many prayers. I hope you are encouraged, dear friend and reader. God hears and answers prayers. A couple things were hard to navigate through, but I am prayerfully faith filled for the coming month. Because his counts are still high, and they wanted to increase his dosage to 125%. This is the same dosage that wiped him out last March and put him in the hospital. This was what I was afraid of, and so I was quite apprehensive about agreeing to this. I felt the strength and courage to push back and question this while trying to respectful to the Nurse Practitioner. We came to an agreement to increase his dosage with a count check in two weeks to make sure this dose is not too high, instead of waiting the whole month to check his counts again. The second issue, was that s...

Tomorrow is Jack's treatment day. We are going in a week earlier than the normal schedule, because otherwise he would be all juiced up on steroids on his birthday and Thanksgiving next week, a not so happy scenario for anyone. So because there is some flexibility in his schedule, we are going in tomorrow. Our appointment is at 10:30, and likely we will get out of the clinic by 1 or so. It seems that we really do not get out of there in anything under 3 hours. Seems the norm for out-patient visits, the average being 4 hours. Gladly, this is just for a blood draw to get labs and receive his IV Chemo, which means we can bring all the snacks a little boy could ask for! His counts have been on the high side for the past couple visits, so I think he may end up getting an increase in the dosage. The last time the Dr.'s increased his meds (last March), the dosage was too high and he really suffered from it (hospitalized for 10 days in April). I feel...

I can hardly give a more succinct reason for why this blog is so frequently neglected than we are busy living life. There has been a lot going on, between school activities, church activities and meetings, and just life! My little boys are growing so fast, their birthdays are around the corner, as are the holidays and with that a whole lot more to do and less time to blog! I feel like I have been in a season of adjustment and learning, always learning, how to balance it all. I try not to be too set in my ways, that when a new element comes, I am not totally thrown off balance. But that happens too. Seems like a different lifetime, 8 years ago, when Jordan asked me to be his wife. So much has happened in that 8 years. It seems like we have a rhythm that follows this pattern: Jack's treatment day, followed by a week of steroids, recovering from steroid week, two really fun busy and happy weeks... repeat. In the mix of that somewhat simple breakdown is a busy schedule that we are cons...