Welcome

Thank you so much for taking the time to visit our family blog. This may be your first visit here, or you may be a friend from across the globe, or family that we have just seen. Who ever you may be, thanks for taking the time to read about our little family, and all we are learning on this adventure the Lord has called us to live! Here you will find, the random thoughts, funny stories, prayer requests, and the journey our family and Jack is on with his battle with Leukemia.

.being home.

Since we got home on Wednesday afternoon, we enjoyed two really sweet days of recovery and rest with Jackson. Things were going really well both days, and even the nights were going well. After Jack got treatment on Friday, things started to be a little bumpier than before.

As I said in the previous post, he has been throwing-up a few times each day, and has not been feeling very well. He also has been having lots of yucky poops (sorry for the excessive details!) and so his little bottom is VERY raw. Poor little man is having a rough few days. Every time I put on protective gloves to clean is IV or change a diaper (the chemo comes out in his urine and is not good for us to touch), or bring his meds to him to take, he starts to cry. I know he will get more used to these things as time passes, but it is hard to hear him cry and even harder to convince him that what I am doing is for his good, especially when it hurts him a little.

Jordan and I both made it to church today(not at the same service), and it was so sweet to be able to sing to the Lord in corporate worship. There is something amazing that happens when you go through a trial, that brings worshiping God into a new focus. The words of the songs, suddenly have a deeper meaning, and ask you to think more thoughtfully about our God. Not that singing these songs pre-trial were lacking depth, or meaning.... but they somehow ring more true to me than before and I am more grateful that we can come together and sing our heart out to a God who hears!

Thank you again friends, for every email full of encouragement and prayers, for every comment on the blog and Facebook. I want to get back to each of you and thank you for the specific ways it has helped, but just cannot spend the time on the computer. Please hear me now and know that you are serving us so well by continually pointing us back to the gospel, to the word and to the hope we can find in a faithful God. You all are such blessings to us, and we are so grateful for every one of you.

So some promised pictures... I have not taken any since being home, since Jack has been sick, they would not be very nice ones! Here are a few from our last night at the hospital.

The night before we left, Jack was so hyper. He was jumping up an down on his bed, running around the room with him blankie tied around his neck like a cape, jumping on me and Jordan. It was a fun to watch him be so silly after being sick for so long. We are looking forward to him being like this again soon!




Dressed in regular clothes and ready to go!! Just waiting for the ok from our nurse and Dr!

12 comments:

Rachel said...

Tali, So glad to hear that the Lord blessed you with some sweet time and rest your first couple of days home, and that the results were so incredible!! Praise the Lord!! We will pray that Jack's sickness from the treatment will be less and less as his body adjusts, as well as him getting used to all of the changes that upset him. You are an awesome mom, and you and your husband are doing an amazing job taking such great care of your precious gift as he goes through this time. May the Lord continue to be your strength, hope, and peace, and may the Holy Spirit guide you every step of the way. Love you!

Anonymous said...

Wonderful pics! Praying for rest and a break from feeling so sick. I'm sorry he's not feeling so well. I imagine it must be very difficult to see him this way.

Couple ideas on the raw bottom: Aveeno oatmeal bath or just plain old cornstarch in the tub. Our ped has also said a little 1% hydrocortisone on the really sore spots on butt cheeks is okay. :) I don't know if he's a yogurt-eater, but that should help, too! And good old "air time" is always helpful as well.

Love to you! So glad Jackers enjoyed his small package from us.

Much love,
Jenny

Anonymous said...

Wonderful pics! Praying for rest and a break from feeling so sick. I'm sorry he's not feeling so well. I imagine it must be very difficult to see him this way.

Couple ideas on the raw bottom: Aveeno oatmeal bath or just plain old cornstarch in the tub. Our ped has also said a little 1% hydrocortisone on the really sore spots on butt cheeks is okay. :) I don't know if he's a yogurt-eater, but that should help, too! And good old "air time" is always helpful as well.

Love to you! So glad Jackers enjoyed his small package from us.

Much love,
Jenny

B. Emerson said...

Praying for your family every day! Particularly praying for Jack to feel well and to have peace even when he doesn't. So glad you both made it to church and were able to encounter the Lord in worship. So grateful He is near and you are all in His hand!

B. Emerson said...

Praying for your family every day! Particularly praying for Jack to feel well and to have peace even when he doesn't. So glad you both made it to church and were able to encounter the Lord in worship. So grateful He is near and you are all in His hand!

B. Emerson said...

Praying for your family every day! Particularly praying for Jack to feel well and to have peace even when he doesn't. So glad you both made it to church and were able to encounter the Lord in worship. So grateful He is near and you are all in His hand!

amy said...

tali, he looks like such a sweet, adorable little boy. you are very blessed! will continue to pray for your treatments at home and that the Lord would grant much grace, especially to jack, as you walk through this trial and glorify our Lord.
~amy davidson

Jordan Family said...

I am praying for our faithful God to meet all your needs. I can't even begin to imagine what it must be like for the little buddy to go through so much pain and discomfort and then having to be the one to care for him and help him to endure it. May God continue to strengthen you in the watches of the night. Love and hugs -aj

Trace said...

Dear Tali, I go to church with Eric Hughes and we are praying for your son Jack.

I wanted to share a remedy for sore bottoms, etc. that we've used in our home for over 23 years.

It's called A&D Ointment and it's been around forever. I first learned of it's miraculous properties from my Mennonite Aunt Dawn who used it with her sons and cloth diapers.

The ointment is infused with the vitamins A&D (hence the name) and also cod liver oil.

It really is amazing. I have told so many new Moms about this ointment because with four daughters and lots of bathroom issues over the years (irritable bowel syndrome, etc.) A&D Ointment has practically 'healed' sore and chaffed bottoms overnight.

It might seem greasy and sort of smelly (the cod liver oil) at first but the ointment absorbs quickly into the skin and doesn't irritate like ointments with zinc oxide can (hard to wash off as well).

I know I've written alot but I feel like I'm supposed to share this with you for Jack's healing/comfort.

You are on our hearts and on the Father's heart.

Trace and Corb Batton
Sovereign Grace Church of Chesapeake, Va

Mimi said...

Praying for you and your little Jackson.

The Brown Family
SGC Chesapeake, VA

Courtney said...

Continuing to pray for your little Jack and for the rest of your family! Thanks for the updates. It helps with being able to pray more specifically for your needs!

May God uphold you today with his strength and his grace that is sufficient even in your weakness!
~Courtney Minard

Anonymous said...

I check your blog almost every day...you guys are constantly on our hearts and we are fervently praying that you and Jack will get all that's intended for you from our Merciful Jesus. Oh the things that Jack will learn from all of this...good things, things to grow him closer to His Creator...a depth that some never get to experience. Bless you all.

Natalie Tibbetts