Skip to main content

.Addison Update.

Today we were able to see Addison!!!

Lotte was discharged today around 11:30 am and came home to meet me and gather a few things, before we all headed to Chapel Hill in time to meet the Cardiologist. By the time we got to the hospital is was 1:45. We were able to go straight into Addison's room and be with her, and to our great surprise and delight, she was not enclosed in a "box" but totally open and we were able to touch her and love on her immediately. It was a very emotional reunion, but touching and wonderful to behold.

After a little while we were able to meet with the surgeon who will be performing the operation on Addison tomorrow. He actually spent 45 minutes with us answering questions, drawing diagrams, and just helping us to understand what will be happening tomorrow. He was very encouraging. He told us that in cases like Addison, the mortality rate is as low as 3%, which is very good to hear.

Right now, the surgery is scheduled for 7:30 am and we were told will last most of the day. There are a few unknowns about the condition of her heart, that can only be determined once the surgery has begun, and certain complications can elongate the process if there are any other areas that require repair. Thankfully, a nurse will be coming out during the course of the whole day to give updates on how things are going.

Right now, Addison has an incubator tube in through her mouth still, not because she cannot breathe on her own, but because she is having surgery tomorrow. She is covered from head to toe with wires and tubes. Because she has gotten so much fluid through an IV, she is a little puffy around the face, but we can already see that she does look like her sister.

Lotte and Wes were able to spend a good bit of time with Addison this afternoon, and are going to be at the hospital very early Tuesday morning. I will also be there with them most of the day tomorrow. It will be a long day, but we are full of faith that Addison is in good hands, and that the Lord is ultimately working in all of the details. Here are some pictures of our visit today.



















Comments

TSK said…
I thank God for medical technology! May the doctor's hands be guided by God Almighty! Praying for the whole family!
Isaiah 41:10 Fear not; for I am with you. Be not dismayed; for I am your God. I will strengthen you; yea, I will help you; yea, I will uphold you with the right hand of My righteousness.

Terri
September 29, 2009 at 9:28 AM
christy said…
Praying for Addison and all of you!
September 29, 2009 at 9:29 AM
Mike and Sarah said…
Ohmygoodness. I don't think I can truly understand, but now that I have a little one of my own this just breaks my heart, to have all those wires on such a little one, and not to be able to hold her all day every day. I am so glad the prognosis is good - I will be praying for your sister and Addison!
September 29, 2009 at 6:07 PM
liqidimond said…
Breaks my heart seeing that photo of Lotte :(. These are precious photos that Addison will be able to look at one day and know how much she is loved and God's faithfulness. Thanks for the updates, Tali and being a great best friend to your sister.

Love,
Michelle
September 30, 2009 at 2:14 PM
Post a Comment

Popular posts from this blog

Diagnosis and Grace

Friends- "God is our refuge and strength, a very present help in trouble" Psalm46:1 Much has happened since I last wrote only 2 short days ago. We found out much later that night a new diagnosis, that our sweet boy has leukemia . We were not completely shocked but we were certainly shaken. After I posted about what was going on at Shady Grove, and we waited a bit more for some results, and we were informed that we needed to take Jack to Children's Hospital in DC for further testing with specialists. This raised our concern level quite high as you can imagine, that even with a snow storm coming, we were needing to make this trip. I began to google the combination of things they had found in the tests done on our little boy (swollen spleen, low platelet count , swollen lymph nodes) and came up options that were NOT Lyme disease, although a few of these symptoms did also look like Lyme. As a result of the google quest, I came across some concerning outcomes, one of the most...
57 comments
Read more

.coming home.

Well, the past 24 hours have changed things again for us! The biggest update, is that we are being discharged tomorrow afternoon some time! The reason this is so crazy is that the Dr. who was on the floor yesterday, was telling us she wanted to keep us here for the entire first month of Jack's treatment. We had begun to think through how we could do this as a family and all the changes that would entail.... and then our nurse came in this morning and told us she was pretty certain we were going home, as early as today if we wanted!! Let me tell you about the past three days that lead up to this decision of our doctor. Firstly, you should know that when Jack was diagnosed with Leukemia, he had a blast count in his blood of 37. That count is now at ZERO!!!! After the central line was put in on Thursday, they began his chemo treatments Friday. He had been having a fever up until that time. He has responded so well to the chemo, and other medications, that he has been fever free since...
21 comments
Read more

.Day by Day.

"The steadfast love of the Lord never ceases; His mercies never come to an end; they are new every morning; great is your faithfulness. The Lord is my portion says my soul. Therefore I will hope in Him." Lamentations 3:22-24 This has been the cry of my heart these past few days. When thoughts of the future loom ahead and what this is going to look like in a week, month, year are ever present, we are seeking to take things one day at a time. And even as we take it one day at a time, each morning, we are faced with more of the unknown- what the day will bring, how Jack will be feeling, how he will respond to his meds, how he will respond to the staff here, when the nasty side-effects of chemo will begin... the list of unknowns are seemingly endless. Not only is the thought of what the day will bring full of unknowns, but we are also very tired, as we are not sleeping much at night and so we are tempted to view the day through the filter of weariness. So yes, it is a fight each...
22 comments
Read more