Skip to main content

.little trip to the ER.

We just had a quick trip in and out of the ER the past two days. Jack spiked a fever yesterday of 101.2 and so, since whenever he has a fever we have to take him in to the hospital right away, we packed our bags and prepared to be admitted. Gratefully, his fever went down upon arrive at the ER last night. They went ahead and started him on antibiotics last night, and released him to come home. Jordan had taken Jack, and they got home around 10 pm. Little boy had a really hard time sleeping last night. Jordan and I were up at all hours, uncertain as to why he wouldn't sleep. When I was up with him at 5 am, I had the thought to bring him to our bed, or even start the day.... but he finally fell asleep at 5:30am. Thankfully, both Tyler and Dylan slept through all of that!

Jack, Dylan and I went to the ER again today to get his second dose of antibiotics. I spent the better part of the morning trying to get in touch with our Dr. or Nurse Practitioner to find out where I was to take him (either the clinic at shady grove or down town). After talking to several voice mails and people who were not very helpful, I finally got a hold of our NP and although it was her day off, called me from her home to explain everything we needed to know and do in detail. She is great and I feel very cared for by her.

By the time I got the go ahead, it was almost lunch time, and I wanted to try t be back in time for Jack t get a good nap. I should have known that would not happen at the ER. It took an hour to get in a room and another 45 minutes for a Dr. to come see us. We have been spoiled in the Oncology dept of Children's where they take SUCH good care of you. In any case, we were out of there is a little over 4 hours and Jack is now fast asleep in his bed. Dylan is a trooper and although there were a few moments when both boys were falling apart, there was also much grace.

For some reason, Jack has gotten very protective of his IV- we call them his "tubies".... he wont even let me look at them some times, so that makes it pretty difficult for the staff and me to clean it and give him his meds. I am hoping this is just a "phase" he is in for now, as he had gotten so good at letting me do a heparin push each day and cleaning the line. All in all, we will take two 4 hour visits to the ER over a 48 hour stay any day!

here are two pictures I took with my phone! Thank goodness for TV's and all his cars! It made the time pass pretty quickly!

Comments

Jordan Family said…
So cute! Continuing to pray for all of you! Love and hugs from Texas -aj
April 4, 2010 at 9:06 PM
Post a Comment

Popular posts from this blog

Diagnosis and Grace

Friends- "God is our refuge and strength, a very present help in trouble" Psalm46:1 Much has happened since I last wrote only 2 short days ago. We found out much later that night a new diagnosis, that our sweet boy has leukemia . We were not completely shocked but we were certainly shaken. After I posted about what was going on at Shady Grove, and we waited a bit more for some results, and we were informed that we needed to take Jack to Children's Hospital in DC for further testing with specialists. This raised our concern level quite high as you can imagine, that even with a snow storm coming, we were needing to make this trip. I began to google the combination of things they had found in the tests done on our little boy (swollen spleen, low platelet count , swollen lymph nodes) and came up options that were NOT Lyme disease, although a few of these symptoms did also look like Lyme. As a result of the google quest, I came across some concerning outcomes, one of the most...
57 comments
Read more

.Day by Day.

"The steadfast love of the Lord never ceases; His mercies never come to an end; they are new every morning; great is your faithfulness. The Lord is my portion says my soul. Therefore I will hope in Him." Lamentations 3:22-24 This has been the cry of my heart these past few days. When thoughts of the future loom ahead and what this is going to look like in a week, month, year are ever present, we are seeking to take things one day at a time. And even as we take it one day at a time, each morning, we are faced with more of the unknown- what the day will bring, how Jack will be feeling, how he will respond to his meds, how he will respond to the staff here, when the nasty side-effects of chemo will begin... the list of unknowns are seemingly endless. Not only is the thought of what the day will bring full of unknowns, but we are also very tired, as we are not sleeping much at night and so we are tempted to view the day through the filter of weariness. So yes, it is a fight each...
22 comments
Read more

.coming home.

Well, the past 24 hours have changed things again for us! The biggest update, is that we are being discharged tomorrow afternoon some time! The reason this is so crazy is that the Dr. who was on the floor yesterday, was telling us she wanted to keep us here for the entire first month of Jack's treatment. We had begun to think through how we could do this as a family and all the changes that would entail.... and then our nurse came in this morning and told us she was pretty certain we were going home, as early as today if we wanted!! Let me tell you about the past three days that lead up to this decision of our doctor. Firstly, you should know that when Jack was diagnosed with Leukemia, he had a blast count in his blood of 37. That count is now at ZERO!!!! After the central line was put in on Thursday, they began his chemo treatments Friday. He had been having a fever up until that time. He has responded so well to the chemo, and other medications, that he has been fever free since...
21 comments
Read more