Skip to main content

.Phase 3.

It is hard for me to believe that we are about to begin phase 3 of this whole crazy thing! Tomorrow marks the beginning of the 3 year mark that we can expect for Jack to be in treatment. So 3 years from tomorrow, he should, Lord willing, be done!!! Let the countdown begin!

This past phase he just finished, called Consolidation, has been easy compared to the first phase. I feel like we have finally gotten our Jackers back, after being so food obsessed the first phase. He is running around chasing his brother, talking all the time, singing and dancing, and overall just so happy. It has been so wonderful to have these days, even when he has had to undergo many procedures at the clinic.

So tomorrow we begin phase three, called Interim Maintenance 1. This phase will last 56 days, and we go in for treatments every 10 days. He has to have blood drawn prior to these visits, to ensure that his liver and kidney are functioning well with the increased dose of a certain Chemo he will be getting.

Jordan is going to Louisville KY tomorrow for 4 days, so we are on our own. I am praying that Jack does not experience many harsh side effects from this new treatment plan. He will be getting a chemo drug he has already gotten, but instead of it being put into his spine, it will be given to him in his IV.

Please pray that this week the boys all sleep well. I am very aware of my weakness and weariness when they are up at night and crazy all day! Also, please pray for minimal side effects during this new phase of treatment!

Comments

Popular posts from this blog

Diagnosis and Grace

Friends- "God is our refuge and strength, a very present help in trouble" Psalm46:1 Much has happened since I last wrote only 2 short days ago. We found out much later that night a new diagnosis, that our sweet boy has leukemia . We were not completely shocked but we were certainly shaken. After I posted about what was going on at Shady Grove, and we waited a bit more for some results, and we were informed that we needed to take Jack to Children's Hospital in DC for further testing with specialists. This raised our concern level quite high as you can imagine, that even with a snow storm coming, we were needing to make this trip. I began to google the combination of things they had found in the tests done on our little boy (swollen spleen, low platelet count , swollen lymph nodes) and came up options that were NOT Lyme disease, although a few of these symptoms did also look like Lyme. As a result of the google quest, I came across some concerning outcomes, one of the most

.Results and Re-Admission.

I am so happy to share that the results from the bone marrow biopsy came back with the results we had hoped and prayed for! They said they found less than 0.1% Leukemic cells in his bone marrow!!! So this is such great news! The prognosis is a good one, and now we get to keep marching on into the next 3 years of making sure the Leukemia does not come back and he is fully in remission! Thank you all so much for all the prayers said on our behalf! I also have the happy report of how last night and this morning went as well... So last night, we woke Jack up at 11:30 to feed him one last time before midnight. He was so sweet and groggy but ate a bunch of nuggets and french fries. We gave him a bottle and put him in bed at midnight and hoped for the best... well, he did not wake up again until 4:45... which was AMAZING for us and him! That was a long stretch for the little guy! After that he cried for a while and Jordan tried distracting him with books and holding him for a while. Jordan w

.coming home.

Well, the past 24 hours have changed things again for us! The biggest update, is that we are being discharged tomorrow afternoon some time! The reason this is so crazy is that the Dr. who was on the floor yesterday, was telling us she wanted to keep us here for the entire first month of Jack's treatment. We had begun to think through how we could do this as a family and all the changes that would entail.... and then our nurse came in this morning and told us she was pretty certain we were going home, as early as today if we wanted!! Let me tell you about the past three days that lead up to this decision of our doctor. Firstly, you should know that when Jack was diagnosed with Leukemia, he had a blast count in his blood of 37. That count is now at ZERO!!!! After the central line was put in on Thursday, they began his chemo treatments Friday. He had been having a fever up until that time. He has responded so well to the chemo, and other medications, that he has been fever free since