Welcome

Thank you so much for taking the time to visit our family blog. This may be your first visit here, or you may be a friend from across the globe, or family that we have just seen. Who ever you may be, thanks for taking the time to read about our little family, and all we are learning on this adventure the Lord has called us to live! Here you will find, the random thoughts, funny stories, prayer requests, and the journey our family and Jack is on with his battle with Leukemia.

.to be home.

Friday we woke up with the expectation to be staying at Children's Hospital for a couple more days, with Jack's counts crawling there way up to two hundred. I was packing my bag to spend the night at the hospital, only to get a text from Jordan that his ANC went from 90 the previous day to 230! We were likely going to be coming home that afternoon!

AMAZING. Simply put, God is amazing. I could not get to the hospital fast enough. Such happy news. And truly shocking. We had taken him off of the morphine the previous day, and he did really well with that. The doctors finally figured out what virus he had, Roseola. He had pretty much a textbook case. Fever for 5 days, then he broke out into a head to toe rash. We thought the rash might have been a reaction to the blood transfusion he got, but it stayed until a day ago, and a reaction to blood would have looked a lot different.

So, we came home Friday afternoon. My mom, who had been watching Tyler and Dylan kept them one extra day, so we could re-acclimate to being home. We had hoped that Jack would love being in his own bed so much that it would be a peaceful, restful night. We went out for ice cream to celebrate being home, and then came back with high hopes for a quiet night. Ah, well, Jack, you see had gotten used to us being not only in the room with him 24/7, but in bed with him at night. Yeah....so sleeping has not been too great.

In fact, since Friday, Jordan and I have been up taking turns every night putting him to bed again, comforting him, ect... I think it is harder to get out of your own bed at night than a hospital bed. Being in your own bed means coming out of deeper sleep, which is no fun.

So Tyler and Dylan came home Saturday morning, the boys ran to hug each other and then were off to play together. A very happy reunion. That made our hearts exceedingly glad. We spend the past few days re-adjusting, getting back into a rhythm. Although the past few days, Jordan has been spending with us, so today marks my first day flying solo back into things.

Since being home, we went to the zoo, had out first dinner outside on the deck of the season, went to our church all together to worship the Lord, and spent lots of time laughing. How can I tell you how grateful I am to have this time together again? It is hard work to being a family of 5 with crazy kids and a weak and tired little guy, but work I gladly do.

Jack goes in on Friday to get blood work done to see what his counts are, so we can restart his daily chemo or not. He has been enjoying the past couple days all medicine free. It has been a nice break for all of us.

Strangely, the skin on his hands and feet has been peeling. Imagine when you get a blister, and the skin is all new ans sensitive underneath. The blister part us that thick skin and it is peeling, and it hurts. Well, that is the entirety of his feet. It is pretty yucky, and it hurts him a lot. Please pray for his little feet. There isn't much I can do for him, except give him Tylenol and clip the skin as he lets me. Poor buddy.

We are grateful beyond words for the many many people who have been praying. It blows me away to see the church doing what God has called it to do with so much joy. It makes me love His church more, humbles me to be the recipient of such care and support. Amazing how The Lord not only changes our hearts and saves us, but then gives us new hearts that want to serve and love others. I love the church more after this time, I don't know how to thank those who have so generously taken such good care of us. Thank you for the continual prayers. For the support. We love you guys.

1 comments:

Joe & Rakel B. said...

SOOOO glad you are home and that you had the chance to just enjoy each other as a family the last few days! Will definitely continue to pray for all of you! Love you dearly!