Thank you so much for taking the time to visit our family blog. This may be your first visit here, or you may be a friend from across the globe, or family that we have just seen. Who ever you may be, thanks for taking the time to read about our little family, and all we are learning on this adventure the Lord has called us to live! Here you will find, the random thoughts, funny stories, prayer requests, and the journey our family and Jack is on with his battle with Leukemia.


Another day here at Children's Hospital, sitting in our room, while my baby sleeps. He was up most of the night, having trouble sleeping, mostly due to the fact that I was not sleeping next to him in his bed. I tried to get him to let me sleep on the couch, but he would not have it. He also was having a tummy ache most of the night. Somewhere between the alarms beeping when his meds were finished and him crying because i wasnt next to him, i caved and snuggled up for the remainder of the night. I think that was at 3:30... So now he is sleeping away.

This morning, his counts took a little dip. I had been expecting them to go up maybe a little, not holding out for them to go too high, but instead they went down a little. The Dr. Isn't concerned. Kids like Jack can have a little bit of a mini roller coaster ride with their counts going up and down. We are hoping that the upward swing continues tomorrow and through the weekend, and we will be able to leave by Saturday or Sunday.

His counts are as follows:
ANC 90
Red blood cells 8.2
White blood cells 1.0
Platelets 93

We wait for his counts, specifically his ANC to reach 200.

I do want to say, that yesterday was such a great day for Jack. He was laughing and making jokes, making us smell his stinky feet and then cracking himself up about our reactions. He went to the playroom twice and had two bowel movements! The first bowel movements in a week or more! He seemed more himself than he has in over a week.

The mouth sores seem to be healing too. So good. So now we just wait. Wait for counts to rise, for his body to heal. I read this today and it was an encouragement to me as we wait on the Lord.


The psalmist says, "Wait on the Lord; be of courage, He shall strengthen your heart. Wait, I say, on the Lord!" (ps. 27:14). There is no real danger. You are safe while God lives, while Christ pleads, and while the Holy Spirit dwells in you.

Do not be fearful and unbelieving. "Wait on the Lord; be of good courage." Wait on the Lord as a beggar waits for a handout. We have gone to God's door, knocked, and waited, and obtained gracious answers. Wait, but knock as you wait. Knock, but with fervent pleading and strong confidence, for the Lord Himself waits to be gracious. Agonize in desire. Make the door of mercy resound again and again with your resolute blows. The Lord is good to those who wait on Him. He will answer you in due time, and you will never be sent away empty handed. It is your Father's business to provide for you. His name is Jehovah Jireh.

It is your Father's business to preserve you. He has given His angels charge over you, to keep you in all your ways. In their hands they shall bear you up, lest you dash your foot against a stone (ps 91:11-12).

It is our Father's business to mark the future. Our eyes are dim. We cannot see tomorrow. But our Father knows all about tomorrow, and He will be ready for whatever happens.

Therefore, I wait on Him. I raise no questions. I expect great mercies. Blessed are you if you also wait on Him.

Beside still waters, pg 68 Charles Spurgeon


Anonymous said...

So glad his mouth sores are healing. Continuing to pray!!!!

Jesse and Rose said...

I have been praying for you two every day

Charissa said...

Tali, you have no idea how much this post helped me today. Thank you for sharing from your journey and right out of the struggles in which you currently sit. What a hope we have because of our Great God! Praying for you.

Charissa said...

Tali, thank you so much for sharing this today. You have no idea just how MUCH I needed to read this today! Thank you for sharing directly out of the place in which you are struggling. Isn't it such a comfort to know that we have such a Great God? Praying for you all.

Anonymous said...

Thank you for sharing this quote. It was very encouraging and very timely! Praying for you guys.

Katie said...

Hi Tali. I met you during the Pastor's Conference...my daughter's name is Tali, too. :) Anyway, just wanted to let you know that we continue to pray for you and for Jack. I know that many, many others are lifting you guys up as well.

Your words on here...your hope in God, your fight to cling to Him amidst all of this agony has been such a reminder to me that God's grace is so real and powerful. Thank you. You're reminding me that no matter what, Jesus is worth it. Thank you, Tali.