Little buddy is tucked into his bed, hopefully for the night, and at least for the next couple hours! Turns out he had an ear infection brewing in both ears, and the sores on his mouth have gotten worse. The dose of steroids he has been on has been actually helping keep him going, as it turns out, his blood levels are very low. In fact, they said that if they had been at the clinic earlier in the day, they would have given him a blood transfusion.
His ANC has gotten down to 670 and his platelets are below 80. Not the kind of numbers you want. So we are fever patrol, praying that he does not get sick in the next week, as a fever will automatically have him need to be admitted to the hospital since his counts are so low.
They have lowered his Chemo dosage down considerably, in the effort for him to rebound back to a healthy level. He is also on two antibiotics for the ear infections and the mouth sores that they think are a viral infection. We also are giving him pain meds at night to help him sleep along with another dose of steroids tomorrow. It is a strange thing to see 5-6 syringes of medicine in front of you.
Jordan told me, that while the nurse why trying to access his port, he was crying and said to her, "Why are you hurting me??" It dawned on me, that he has no idea why he is going through all this. When he was first diagnosed, he was too young to understand any of what was happening. But he is getting older, and can understand more now, and is obviously perplexed by most of it. I am going to spend some time thinking and praying through how to talk to him about it, and how often, ect. We don't want to unnecessarily put fear in his heart, but we do want him to understand as much as a 3 1/2 year old can.
Thank you friends for praying for us and for him. We are so grateful. The prayer requests from earlier are mostly the same.... rest and healing, relief from pain in his mouth, and ears, and peace in his soul and ours! The next step is to go back in 2 weeks to get a blood level check, and hopefully that will be the only time in the next two weeks we will have reason to go back.
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-Moriah